I don't know how many people who "only" have IBS visit this site and read this board, but I am going to post my experience to stay in contact with Nicole and Jini, to get advice from others, and so that my experience might prove useful to others with IBS. I like the wholistic approach on this board and in the book Listen to your Gut. The main IBS board (ibsgroup.org) is too drug and “miracle-cure†oriented to suit me. Based on all I my reading and research, IBS/IBD/Chrons are physical manifestations of unhealthy diet and lifestyle, toxins and stress, and we who have it are the “canaries†ie. due to some factor, genetic or other, our health is affected, not the general population (altho the sheer number of people who report some type of IBS is quite alarming at 15-20% of the population.) This is a vast oversimplification, but I don’t want to go into the whole rant here.
I was diagnosed with IBS in 1975 when I was senior in college. I managed it all the way to about 1997 when it became very life-limiting. I am now 55 years old. Over a period of about 4 years I went from IBS-c to loose stools all the time. I got some relief by making simple dietary changes. When I realized it wasn’t going away, I started reading and trying different things to get relief. In 2002, I had food allergy testing done on my blood and after about 2 ½ weeks on an elimination diet (most notable elimination was wheat), I had about three symptom-free days……….the first in five years. I was impressed and encouraged. Following this, I spent a year and a half on rotation diets, elimination diets, anti-candida diets and although I had many syptom free days it never lasted. Diagosis: Intestinal dysbyosis. It was at this time that I developed another symptom which has become very limiting: I get brain fog, confusion sometimes accompanied by gut pain and headache every day between 1 and 2 pm, and I become very tired, ie. I could literally fall asleep on the floor in my office. This is tough for someone who works. A nap works wonders, though.
Following the dietary route led me down the nutrition path, and I decided that to heal my intestinal walls I needed to eat good food and get rid of inflammation. That was about 3-4 years ago, and I have implemented many changes over time. Currently I eat basically meat and vegetables with brown rice virtually my only carbohydrate. (so I’m not feeding the bacteria) No sugar and no fruit (I do tolerate 2 small grapefruit per week) I drink only triple filtered reverese osmosis water, NOTHING else. (why let chlorine kill those expensive probiotics?) I shop for the highest quality ingredients --especially meat, and I eat home or bring my food 95% of the time.
I have reversed asthma and periodontal disease, tamed my blood sugar which resulted in much improved sleep. I am 5’9†and I weigh 126 lbs. (lost 10 when I gave up the wheat and sugar) I used to be a runner but now I don’t have the pep necessary for running. I bicycle instead and walk. I routinely do a 20 mile ride every weekend, in the morning when I feel good. On vacation in France last summer (in a rented apartment where I could cook really good food for myself), I did several rides of 50 miles in one day. (That trip was tough, however, with the IBS. I resolved not to travel again until I feel better because I’m wasting my money if I do) My blood pressure is 90/50, my good cholesterol is 71 and my triglycerides are 46. I look much younger than my age and I am never sick-- unless you count feeling awful from about 2 pm to 7 pm every day. I have taken fish oil for 4 years and L-glutamine on and off for two. I prefer to get nutrients from food rather than in a bottle. I spend a great deal of time shopping, cooking, cleaning up and sleeping. Oh yeah, and waiting around to go to the bathroom. I am extremely busy doing all this and my biggest accomplishment is geting myself to work every day. I negotiated in a shorter work day in my current job -- I leave at 3.30. It’s very bad for my career prospects.
Reasons for my interest in the elemental diet: Each IBS patient is different. I believe that my problem is a bacterial imbalance, or bacterial dysbyosis. The evidence of this has come to me in several ways. First: I took Erythromycin for ten days after elective surgery in 2003 and enjoyed 14 symptom-free days (then it all came back). Using the exclusion diet gave me a good many symptom free days, and eliminating carbs, beans, fruit made a big difference for a while, then it came back. I used Natren probiotics to make my own yogurt and got some real relief for about 2 months or so. It is interesting that whenever I make a change and there is an improvement, it always goes back after a time, as if the bacteria were adjusting to a new environment.
Last Fall I became aware of the research of Dr. Mark Pimental of the Cedars-Sinai Medical Center in LA. He uses rifaximin for 10 days (an antibiotic intended to cure tropical bugs in the gut over a three day period) to eliminate bacterial overgrowth in the small intestine, and this eliminates the IBS. (he feels the BO is the cause of IBS) Jini has also posted studies done in Australia where Chron’s patients treated with an antibiotic regimen saw improvement and even remission, further convincing me of the bacterial etiology of these diseases. I looked at Pimental’s studies carefully and read his book. The problem is, the actual complete ‘cure’ rate is not high, or, at least, I wasn’t able to find hard numbers on it. Pimental says that he gives patients a low dose of erythromycin to create or improve natural cleansing waves in the small intestine to prevent the IBS from returning. He says if the IBS does return, in two months, in a year-- he just puts the patients on rifimaxin again for another round. To me that’s not a cure, and I don’t feel like chancing a course of antibiotics that is not going to be a sure thing in terms of a cure. He does mention that in difficult cases he uses the elemental diet to get rid of the BO, with a product called Vivonex. Here is what he says:
“Research conducted since the 1970’s has shown that a diet consisting exclusively of Vivonex and water can significantly reduce overall bacterial overload. In tests conducted by my colleagues and me involving over 100 IBS patients, bacterial overgrowth was eradicated in more than 80% of cases after the Vivonex diet was followed for two weeks, making it one of the most effective ways for addressing bacterial overgrowth. In fact, we have now treated over 800 patients with IBS/bacterial overgrowth this way with this rate of success.â€
From: A New IBS Solution -- Mark Pimentel, MD Cedars-Sinai Medical Center
Health Point Press 2006, page 76
Does this mean that I have an 80% chance of getting rid of bacterial overgrowth? Will that cure my IBS? Are they one in the same? Were those patients cured of their IBS? Or did they get just a reprieve?
Despite some remaining scepticism, I feel that this is worth trying. I like those kind of odds, I don’t feel that doing the ED is as dangerous to my health as taking rifaximin, and starving the bacteria seems like sensible thing to do (and so satisfying!) With a good product like AbsorbPlus available and my existing health status I should be fine, physically. Furthermore, I can do this in reasonable period of time. If it works or gives me any improvement, great. Otherwise, I will chalk it up to research and discovery. I must keep on trying to get well, because, as you all know too well, I have no life otherwise.
I will just mention briefly here another reason for my decision to undertake the ED. I tried the Oregano Oil Protocol and the Olive Leaf Extract Protocol, and I was unsuccessful with both. The volume of stool produced and the resulting discomfort was more than I could tolerate while working. Jini commented that it sounded like the Herxhiemer reaction, and I would tend to agree. It felt like I was implanting probiotics in the evening to grow and flourish and then be killed by the Olive Leaf Extract during the day…. A veritable battlefield in my intestines, leaving me lots of dead bodies in my gut to process and dispose of. Painful. I would like advice incorporating either the WOO or the OLE in this ED process, maybe the second week? We’ll see. Advice welcome.










