Child with CD

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Child with CD

Postby Donna on Tue Dec 12, 2006 3:26 pm

I will try to make a long story short - my daughter (now 71/2 years) always had something wrong with her that no one could pinpoint, she was a picky eater and sick more than she was healthy. She nursed shy of two years because everytime I attempted to introduce solid foods without nursing she became very sick and alway had a distended stomach...anyway fast forward to five years of age when the blood first appeared in her stools. She went downhill quick and before I even had time to absorb what was happening she was diagnosed with UC we were living at Sick Kid's in Toronto and her large intestine was being xrayed daily for fear of it ruptering. She didn't respond to Prednisone or Remicade and is allergic to a lot of anti-biotics so during an emergency surgery her large intestine was removed. She never really recovered the next year but eventually went in for the j-pouch creation and two years after her l. intestine was removed she had the let down procedure. She had a decent summer but her stool never firmed. The doctors as always looked at her height/weight charts and felt she was okay even when I insisted otherwise but suddenly changed their minds when her bloodwork indicated she was anemic and her inflammation was off the charts. Again she had gone downhill very quick - ironically I had taken her in for her 5 year (two years late) immunization due to nagging from the local school board - something I will never do again! Now they have decided she has CD and the geographic tongue they said she has had since birth is really CD soars...I can go on. We had tried the Specific Carb Diet while in Sick Kids prior to her going on TPN to no avail. So I hadn't considered the natural method when total food removal and SCD didn't seem to make a difference. Two weeks before her last scope this fall I was so devestated by the fact she was probably misdiagnosed and the medical system had failed me and her that I set out for an alternate solution. I came across Moducare and totally removed gluten from her diet she reponded with amazing results. This led me to the theautoimmunesite and that domino effect led me to a site about Jini's book. Since I ordered LTYG on Nov. 6th I can't get over the change in my girl. She actually has the energy to talk back. She only goes three-four times a day and it's formed (it was minimum 12x's a day). She no longer has "pooh feelings" that stop her in her tracks, I can't explain the freedom her and I have discovered in a few short weeks. She is borderline blood tranfusion anemic but using the book's guidelines I have introduced iron successfully without any blood or constipation.

Anyway, my question is she has always had her eyes water when going to the washroom (from birth) even when she isn't straining. She mentioned it herself the other night (I have lived in the washroom with her for the past three years) when she said you know it's strange my eyes water when I pooh even though I am not pushing yet... they water when I start thinking about pushing even. Has anyone experienced this or could it be some remaining fissures that need time to heal? She has had countless scopes that I know it's not a stricture and again it's something that was there since the beginning of time. Any suggestions or theories are greatly appreciated. Sorry for my lengthy theraputic babble! :)
Donna
 
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Joined: Tue Dec 12, 2006 2:21 pm

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