My 11 year old daughter (Aria - crohn's) followed the Absorb Plus elemental diet for 2 weeks, and has slowly re-introduced soft foods. Currently she can tolerate creamed white rice, olive oil, maple, eggs, banana, and a small amount of fish). She is diabetic, so cannot continue the Absorb Plus shakes and eat rice since the carb count is too high. Instead, she takes pure whey isolate shakes (BioChem) with Udo's 3-6-9 oil blend twice a day. She takes mucosaheal (moderate strength), Natren Healthy Trinity (twice/day), George's aloe @ bed time, grape seed, Q10, Ester-C, bioflavinoids, a blood builder (iron, folic acid & B12), gummy vitamins, and L-glutamine upon waking. She is receiving accupunture weekly and doing healing visualizations. (She loves the pain relief and increase of energy from the accupuncture.)
GREAT news is that by day 2, her bleeding stopped completely! Her energy level steadily increased to the point of hour long sessions on the Play Station Dance Mat! She currently has 2 BMs per day, softly formed (thanks to L-glut). Still some crampy urgency, but getting more adventurous to leave the house. She gained 3 pounds! Happiness level is VERY high!
My concern is that at the end of the 3rd week her ESR (sed rate) was 25 - which is the highest level her G.I. will allow without pushing imuran. Today, at the 6 week mark, her ESR was 33, even though her physical exam showed a "normal" feeling soft belly! Her G.I. said it is because we have weaned her down to 1 asacol a day (she was at 6). She will re-test ESR in 5 days and do a CRP (current inflammation test) as well. Of course, her GI is recommending increasing asacol dosage and starting imuran, all of which Aria desperately does not want to do.
What else can we do to reduce the inflammation? Switch from Udo's 3-6-9 oil to only fish oil (thus only omega-3)? Increase mucosaheal dosage? Increase Healthy Trinity dosage?
We were really hoping to use these past 6 weeks to prove to Aria's GI that she can achieve sufficient healing without a prescription. Luckily, her GI has been supportive and cheering us on from the side lines, only using lab tests to detect inflammation levels. How can Aria feel so great, but the lab numbers be so poor?
Thanks ever so much for your thoughts and advice,
Heather










